Home Sweet Home

Today is the day we have been waiting for. We are all packed up and almost out of here. Just waiting on a few more things. He had a barium swallow test this afternoon and everything looks good. He is feeling much better and is in a small amount of pain. And we have a feeding schedule in place that will make him comfortable until he can tolerate his normal amount....hopefully in a couple of weeks. I will keep you all updated. Thank God we are almost on our way home.
Love you All

Recovery Day #2

Noah has had a tough couple of days but is doing okay. He has been running some fevers and some of them are quite high so they have came in this afternoon and done some labs to check to see if he has an infection. They are also treating him for an ear infection. We gave him his first bottle (if you want to call it that) it was more like 20mls at around 4pm tonight and so far that seems to be going well. Tomorrow they are going to be taking the epidural out and we will see how he feels then. Today he seems a bit more cranky but is much more awake than yesterday.

We met with a car seat specialist who is going to help find a new carseat for him because he is growing out of this one length wise. We will be able to see some demo's and see where we get with her.

We are also going to see a cranial specialist that is almost like a chiropractor while we are here to talk about the things he does and how they could help us. This doctor does manipulations of the skull and this is known to help with cronic ear infections and could even help with his feedings.

Another thing that we are going to do while here is redo the Feeding Study. The Speech therapist that works with us here thinks its a good idea. She was at the first one and thinks that if he really aspirated as bad as it showed we would have more problems with sickness. So she wants to do it again. And I would love to have it done again as well. Because part of me doesnt think he has a problem we still give him juice unthickened and he has done fine with it so far.

Well that is all for now. We have had some great nurses this time. He is doing ok. And Im tired but doing fine.

Thanks for all your thoughts and prayers. and please keep them coming.

Love you all

Beth & Noah

Recovering

As you all know Noah went in to surgery yesterday. The surgery went well and recovery was good. Surgery was at 12:45 and he was in recovery at 3:15 with no complications. He had a small siezure while in the recovery room but it was controlled and seemed to be his ordinary siezure and nothing new. We came back to the room around 8 pm and he was very good all through the night. They have him on an epidural and some morphine for pain and he seems to be comfortable. Mommy is not leaving his side and we are both doing fine. He still cannot eat he will begin liquids tomorrow- starting at 2oz every 3hrs. If that goes well Saturday we will try 4 oz every three hours. Thanks for all the prayers and keep them coming for a quick healing.
Back to my little pumpkin. Keep everyone informed.
Love to you all,
Beth

Rolling Rolling Rolling

Exciting news!!! Friday morning Noah figured out how to roll from his back to his stomach. Mommy has been waiting for this for some time now. And he has continued to do it ever since. Very excited.

Friday afternoon Noah was admitted to the Barbara Bush Childrens Hospital because of dehydration and malnutrition. Due to his Nissen failure he was not eatting and what he did eat he didnt keep down. Doctor thought it best to have him admitted to hydrate him and see what could be done about his surgery planned for Oct 1st. Could it possibly be moved foward.

This morning Noah is scheduled for surgery at 11 AM. They will be fixing the failed Nissan and putting a new one in. This time it is not going to be able to be liposcopically done they are going to have to open him up. Extremely nervouse this morning but thinking positively that everything will be ok. The surgery is 3 hrs long and after we will be here for a minimum of 4 days could be longer depending on his recovery. I'll keep you posted. And we appreciate your thoughts and prayers.

He has been improving with his head control and pulls himself foward quite frequently. Which has also been very exciting. We are getting there slowly but surely. And he is growing like a weed. 30 inches long and 17lbs 6 0z.

Thank you all we love you all.