Been bad at posting...again

So life is very hectic..... I thought it was going to slow down after work dropped me to one day a week but it does seem to have slowed. Noahs PT OT Speech fill most of the days and then doctors appts...etc.
But Noah is doing super good with his PT sessions. I cant believe how much improvement we are having. He is getting big 21 pounds 6 oz now. 33 1/2 inches tall.... my boy is going to be tall I think.

Well.... I can say that since Thursday I have had a very good excuse for not blogging. Thursday night I started having flu symptoms.....high temp, cold chills, cough. Friday it got much worse temp between 103 - 104. Still stubborn was just the flu and I wasnt going to the doctors just for the flu. Saturday we went and decorated for my grandparents 50th Anniversary Party and although I felt fine when we left the house, when we left the decorating and started for home I again started running a temp and this time I felt like someone was sitting on my chest. It almost felt like I was having a heart attack or something. I went to the hospital. Need less to say after some torture- swine flu check, xrays. I somehow have a HUGE case of Walking Phemonia. My whole left lung is full....and I cant stop coughing, and Im weak, dizzy, etc. I never wish anyone to get this its horrible.... at least its not contagious because this week Ive been so worried Noah was going to get what I had.
But the worst part of this is WE LEAVE FOR VACATION IN 2 DAYS!!!!! HERSHEY PARK!!!!
So for Today and tomorrow Im taking it easy and resting and hoping that by Thursday Im feeling much better. The doc says it takes 6 weeks to feel 100 % I just want to feel 75% at least.
The only good news is Ive had no appetite and have seemed to lose 10 lbs this week...

LOL
Love to you all...
talk to you all when I return

Noah!

Well life has been so hectic.... and I have been bad at blogging these last few weeks. I will try to do better.
Noah is doing so good...I could jump off my chair right now. He is holding his head up so much better. The new physical therapist suggested to buy an exercise ball and sit him on it as much as I can. We have averaged twice a day and Noah loves it. He sits on top of it while I hold him and then I lay him on his back and we do Baby sit ups where he pulls himself toward me into a sitting position. Ive seen so much improvement these past few weeks. We bought some 3rd food baby food like the speech therapist suggested and he does so well with this. Now we are fighting him to drink his bottles.... the doctor thinks its because not only does he like the solid food better but he has four teeth coming in...his two year molars!!! And you know Noah he needs to do four teeth at a time. Its been like that since the first four teeth.
LOL!!!
Still havent got the results for my testing. Should get it in a couple of weeks. Will let everyone know.
School started back up and Im actually enjoying the online class more than I thought I would. Part of me wishes to just continue with online next term. We will see what happens. I know I should at least take one class at school.
Work has really brought my emotions on this week. Since I had to call out on Father's Day weekend cause Noah was admitted again into the hospital they have decided to drop my hours to one day a week. ONE DAY! If I call out that one day Im scheduled wether Noah is in the hospital or not * its good bye job*. This stresses me out beyond belief because we cannot really aford this. At the same time I dont think its fair at all...and there is NO WAY I would EVER choose my job over my son. So I just have to hope everything works out...but its more stress.
We brought Noah to the fireworks this year. We went to Sanford Fireworks on Friday and Portland on Saturday. Both times he slept through the entire show and woke up right after and was ready to play.... it was cute.
Three weeks till Vacation and I cannot wait. The girls are soooo excited. They know we are going to PA but they dont know why? They are counting down the days. ITs going to be so much fun but at the same time we are leaving Noah with Mom and Dad while we go and I have never left him for that long before. I know he will be in good hands BUT..... 5 days without my little guy will be tough for me.
Well thats it for now.
Love you all.

Update

So we went to Noah's Genetic appt on Thursday. His blood test came back, as all of us know, with a small piece of his Chromosome #2 missing. Researchers still do not know very much about the missing piece of genetics. They did blood work on me to see if I also have the same missing piece in my DNA. If results come back that I too have this missing piece researchers will know it runs in my family and it has nothing to do with Noah's development. If my DNA comes back normal they need to test Josh. IF we can get Josh to agree to testing and his DNA comes back with the same missing piece we know it has nothing to do with Noahs development. But if both Josh and I are normal than it could possibly play a role in the reason for the way Noah's brain developed.
So Noah spent the night in Maine Medical Center this weekend. Siezures have come back. He hasnt stopped breathing but he is having head tremors and falling asleep after and its really hard to wake him up. They observed him for the night and increased his meds, then sent us home Sunday night. I thought this was ok until we got home and he began to act like he was when I took him in. He doesnt have a follow-up until July 8th with the neurologist.
Took him to the pediatrician today because he was still having tremors and being irritable. He has also been sleeping alot. They looked in his left ear and its really infected. They prescribed medicine and said this could be part of the problem with irritation and the head tremors and that we were going to treat it this time. Because he has had so many ear infections in the past months we are hoping that he doesnt have anymore after this one. If he does have more the pediatrician is going to send us to an Ear, Throat, and nose DR and we are going to talk about tubes. But putting a child with siezures under anestesia is very risky.... lets hope he has no more.
Well, school vacation for the kids starts and my school vacation kinda ends. Next week I start back up but Im only taking one online class. I will return to school in the fall. Thinking about taking one class at school and depending on how the online class goes this summer maybe one class online.

Well thats it for now....

Overcame another bump....but still working on it!

So life has been going very smoothly lately. until this weekend. Noah spent Saturday night into Sunday afternoon back in Maine Medical Center. He was having siezures again. Thankfully he was not having apnea with these spells but he went to sleep for a long time after and we couldnt wake him up. So they admitted him for a night to observe him. Around 430 yesterday he seemed to be back to himself, after they increased one of his meds. He still seems more aggitated today and not quite his complete self but he is doing ok. Keep my fingers crossed.
He is doing very well with PT. He has to go to a PT clinic in Sanford for a couple months because our PT is on maternity leave. I was very nervous at first because usually it takes a while for Noah to warm up to someone before finally doing work for them. But first visit he worked the whole visit and was very cooperative. Today we had another visit and he worked for about 45 minutes and complained a little more but he just got out of the hospital last night.
He is doing so good lately. He wants to sit so bad. He loves to be sitting up. When he is in your arms he is pulling himself foward all the time...he is happy sitting up against the corner of the couch or chair. Its exciting to see. Hopefully we will be sitting up soon.
Im exhausted today. Saturday they didnt get us to a room until 4am and yesterday it wasnt really hitting me but today....wow..... I could sleep all day I think.
Well today is the day for my Genetic testing. Im super nervous. What if the test results come back and say Im the reason my son didnt develop right? I dont know. I need to know....but I dont want to know..... We will see what it says...
Grammy and Grampa Quint (Great Grammy & Great Grampa to Noah) come to Maine today. We are excited to see them.
Well...thats it for now.
Love to you all.

The sunshine is out!!!

So last week was one of the toughest weeks for me in a while. I had some health issues that caused me to be in quite a bit of pain. Tried to be strong and deal with the pain but finally ended up going to the hospital last Sunday night. Pain killers and rest was prescribed and life is back to normal again. Erik was wonderful while I was sick (like he is to me *mostly* everyday....cant get his head swelling...LOL) helped me with Noah through the nights and with anything else I might need.
Noah has been healthy the last couple of weeks (knock on wood). Took him to the doctors for a checkup on Monday and no ear infection, and clean bill of health. He is gaining weight and is so happy lately. The smiles he is bringing are so wonderful and it is so much fun. Wednesday when the speech therapist was here he tried to say "more" and at the same time brought his hands together like he was trying to sign "more" as well. So exciting. I bought him one of those mesh things that you put fruit and etc in for babies and they can chew on the food without choking on it. WE are going to try that Wednesday with the speech therapist....with strawberries.... yummy. Noah is doing very well with his head control lately. I have seen a lot of improvement and hope more continues.
His sleeping has improved lately and seems to be only getting up twice a night lately. Erik gets up the first time with him and I the second. Its nice to have the extra help. And its nice that he is sleeping more. He goes back to sleep at 530 AM usually and sleeps till 830-930 AM.
Life is good. Nice to have a break from school. Enjoying my time with Noah and the rest of the family. Kind of makes me not want to go back but I know I have to finish. So I will be going back.

Went back to the doctors on Friday. Trying to work on getting my sugars under control. Doctor put me on a different medicine. I couldnt handle the side effects to the first med. he put me on. Trying this new medicine and I really need to start buckling down on my wieght loss, diet, and excersise..... Monday I shall start.

Erik, the girls, Noah and myself celebrated Friday night. Erik and I have been together for 6 months now...cannot believe its been that long. We have had our good days, some bad days, but all that matters is that we are going strong and we are happy.

Love to you all

Love to you all

Team Noah!!!! And Life!!!!

So May 17th we participated in the 2nd Annual Epilepsy Walk 2009 in Saco, Maine.
Team Noah raised in total: $495.00
Alisha & myself raised money
Walkers included: Erik Goodwin, Marissa Goodwin, Cindy Quint, Charlie Quint, Matt Kearns, Alisha Phillips, Myself, Courtney Frazier, and Noah. Before the walk it was raining. I thought we were going to have a wet walk but right before it stopped raining and the sun came out for a little while. After the walk it began raining again. So weather wise it wasnt the best conditions but it stopped just in time and there was a decent turnout. Thank you to all the people who donated or participated in the walk. This walk means a lot to my family. Next year I hope to have a even bigger Team Noah!!

Noah is doing ok. He has had an ear infection for quite some time. Last Thursday, Friday, and Saturday he had to have an antibiotic given to him in shot form. Yes 3 shots in three days. The other medicine wasnt working for him, he ended up getting a double ear infection while on medication for the first ear infection. The shots seem to work, we went to his 2 year check up on Monday and he had no ear infection. Ended up taking him back to the doctors on Thursday because this week has been HORRIBLE. No sleeping....fussing all the time....not eatting..... thursday found out he had the beginnings of another ear infection and a viral infection.
Doctors dont really want to do tubes in his ears because of his siezures and the risks of anestesia...but if we keep having to give him shots, we might have too.

We got some more news on Noah this week. Dealing with genetics...Ive been pretty upset about it this week. I had another blood test done on him two weeks ago. Results came in and it looks like Noah is missing a tiny piece of his chromosome #2. There isnt a lot of research done on Chromosome #2 and to know more they need to get DNA from both Josh and myself. Im really upset that we have come so far and we are going to rely on Josh on wether or not we can get the answers we need. I hope he will step up to at least help us in this mission. Im scared he wont. I hope Im wrong.
Im getting my DNA work done on June 22nd so we will at least have some answers after that.

Noah seems to be having more siezures lately. The little shakes again. Been trying to keep an eye out. Nothing major lately...and Im crossing my fingers....but Erik has even agreed that he seems to not be himself lately. Staring off more and long empty stares...... I wish they would get under control.

Just using the O2 monitor at night. Had to stop using it in the car rides because his toes were getting sores on them for having the probes on them to long.

Thats it for now. Keep praying...siezures dont get worse.....Josh agrees to the DNA stuff...... I need answers for Noah and his family and love ones.

We love you.

Birthday Boy

Well this year we had a lot of fun with the little guy for his birthday. At his birthday bash on the 3rd we gave him a piece of cake and mommy helped put his hands in the frosting...after that first bite.....he LOVED it. We got a reaction from him this year...which made my day. He had frosting all over his face and on his nose!! It was so cute.
Then on Monday we took him to Mike's Clam Shack, Wells. The waitresses and staff all love him there. They are always so great with him. Well I bought an Ice Cream Cake and we brought it with us. After dinner EVERYONE in the restaurant sang him happy birthday.... and he loved the chocolate icecream.
I cannot believe my little boy is 2 years old already. We have been through so much and Im afraid there is so much more to go through. But every smile makes everything so worth it. I have a very strong little guy, and he makes my life so worht living.
He seems to be doing better. We have had no siezures for about a week now. He has been fussy and started running a temp on Sunday so I took him to the doctor's- I could have diagnosed it myself--- but another Ear infection. But I dont know what has got over him the last few days he has been so vocal and smiley...its been nice. Everytime he smiles I cannot help but smile myself.
I did get the oxegyen monitor last week. And I wish I could say that I have slept. Well the past couple days I finally have but before it wasnt him keeping me up I just couldnt sleep. Had a friend put a little kinesio tape on my bad shoulder to see if it would help and "man what a difference." And I've slept like a rock ever sense.
Tonight is my last night of class for 8 weeks. Im so excited. I need a break. I cant wait to spend more time with Noah this summer. Last summer I was working alot of hours and school. So it will be fun.
Thats it for now.... love to you all....keep praying for us....prayers help.