Its been a while

Things have been crazy busy around here. Besides Work I have decided to stop the Online School I was going to and to actually take classes at Andover in Portland Monday and Wednesday nights. Its hard because that means Im away from Noah more often but its for him that Im doing this so that we can have a better life. I cannot and dont want to work at CLYNK my whole life. So that keeps me busy.
Noah is doing okay. The end of May we had him admitted to the hospital for some tests for one day. They wanted to do a feed study to make sure he was drinking his bottles ok. He had got a slight case of phemonia and they wanted to make sure that it wasnt because he was swallowing fluid into his lungs. Well the test didnt come back with the best results. The results showed that he was in fact aspiring into his lungs a little bit. It did show that he did better with more solid foods but liquid he didnt do so well. The hospital wanted me to feed him completetly by his tube. I wanted to try thickened feeds first. So that is what we are trying. We have been doing thickened feeds for about three weeks now and he is doing okay with that. The added bonus to the thickened feeds is he is gaining weight. His last doctors appt he weighed 16lbs 5 oz. I was phsyced because we hadnt been able to get past 15 lbs in a long while.
Physical therapy, Occupational Therapy, and Speech Therapy is going well. We still have not completely gained control of his head but he is doing 70% better with it. The physical therapist is trying some kind of tape on his back to help his muscles strengthen and it seems to really be helping. He is pulling himself foward now when he is in a sitting or laying position.
A day after turning one he actually rolled over while on my bed. He did it twice! He only does it when he wants to though. He loves to lay on his back and smile and talk.
Last month, the day we were in the hospital actually he actually said "MUM". It was a wonderful feeling. At first I thought I was hearing things but he has said it 6 other times now. I love it.
He is getting there one day at a time.
He started having some other siezures two weeks ago. They are not completely the worst siezures. But they are slowing coming out of Infantile Spasms I think. He now tightens up his legs and arms and rolls his eyes in the back of his head. The increased his meds and we are hoping that works. These ones make me even a little nervous.
But life is going well... Some days are tougher than others but we are alive and as healthy as we can be. And the doctors are so impressed with his improvements. And tell me every time I go in how good Im doing with him because they never expected him to be doing what he is doing already! That makes me feel good.
Thanks to you all for keeping up with us. And Im going to try to be better at updating this.
We love you all!