I cant believe he is almost a year old!!!

Almost a year old and he has come so far! He isnt completely there yet but he is such a strong little boy. Growing up so fast. He now weighs almost 16 pounds and he is striving. The physical therapist actually had him putting wieght through his legs the other day. At first she had to help him by locking his knees for him but by the end he was doing it mostly by himself....man did he look all grown up standing by the couch!!! Lately it has seemed the day for which he holds his own bottle is getting nearer and nearer both hands keep coming close but not yet!!! Soon though! He is off the steriods and at first his appetite decreased and we were worried but it seems like lately he is getting that appetite back. Mommy is helping that along by letting him try stuff off her plate once in a while LOL!
PT is still coming in twice a week and it seems to be helping. OT is coming in once a week. We are making progress!!! Thank God.
I'm getting Noah baptized on April 13th. It will be a very special time. Thank you everyone for praying and keep doing it please. We are not completely out of the water yet!!! There is still a long road to travel. But we can do it.
Noah's hair is getting SO long.....I was going to wait until he was a year old to cut it....but I dont know how much longer I can hold out....I know its only two months away.......but its driving his mother crazy.
His siezures have not stopped. We are still trying that new drug that I was talking about last time. WE keep increasing the dosage. The doctor started him out on a very small dose and it seems to have slowed them down but it hasnt got rid of them. So we have increased it already once and the doctor today increased it again. I'm praying that it helps....Im praying that it stops them.
Well I think that is everything right now. Life is going good!!! And I pray it stays going like this!!!
WE both love you all! Happy Easter everyone!

Where does the time go???

Noah is doing well.... He has come a long way...but it is so hard to believe he is almost 10 months already. We did that Barium Swallow test and everything came out fine. Its still intact! We dont know why he is bringing things up or burping but his surgery has not come undone....thank goodness! He is striving with Physical Therapy he had an awesome session this week. P.T. is coming in twice a week now and we have Occupational Therapy coming in once a week. He seems to be doing really well with that. He still isnt holding his head up completely on his own yet but there is major improvement!!! Im excited.
His Infantile Spasms have not disappeared we have put him on a different drug to try it, and are slowly taking him off the steroids. This new one seems to be helping but as we take him off the steriods they seem to be increasing again. Doctors say its just time...we have to find the right dosage as he comes off the steriods. Im praying that this drug works because the next alternative is injections and I dont want to put a needle into my child everyday. So please pray with me that this drug works.
He has a total of 6 teeth now!!! And seems to be more perceptive to things around him. He gives you eye contact now and looks at himself in the mirror and is smiling more and more. His trunk is stronger and he seems to hold himself better. Before long my little guy will be sitting by himself hopefully....but he is getting so big! He weighs 15 pounds 4 ounces now!!! And is something like 26 1/2 inches long..... We can actually get him into size 12month clothes (some of them) now!!!
My schooling is doing good. I recieved 90's on my first two exams! Now Im into the Medical Terminalogy stage and well thats taking me some time. Its hard to find time to study all those words between Noah and work and everything else in my life. But I need to work on that!

Well life seems to be doing good. Finally! My little guy is striving! And I pray to God every day that life continues down this road instead of the bumpy one I was following when he was first born.

We love you all!