Update

Noah has made for a couple of crazy weeks. He started having siezures again two weeks ago. These siezures are different than the ones he has had in the past. His whole body twitches, he doesnt breath very good, drools, and winces his eyes. Brought him to the hospital thursday night and they increased his meds and did a medicine level check. Friday got the results of the levels and they were in the correct range but he was still having siezures. Took him to MMC again and we got there at 2pm. At 4pm we were told he was admitted, at 6pm we were told the bed was ready we just had to wait for a Pediatric doctor to come look at him, 8:30pm we were still in the ER and I told them that Noah gets siezure meds at 9pm and I didnt want the late can you order them. 10:15pm he still had not got meds and we were still in the ER. I went out to the nurse and said "where's his meds they are now an hr and 15 min late?) and she turned around with an attitude and said"Im doing my best to accomidate your needs..... I told her she wasnt and told her if his meds were not given to him by 10:45 we were leaving because he could get better care at home or a differnt hospital. Nobody came....we left./// we hadnt seen a dr. since 3:30pm.

He has been doing better. WE had a 24 hr EEG done last thursday thru Friday. The results showed abnormal epileptic waves on both the left and right sides of his brain but no real siezures. The neurological dr. says that the hospital is revising some equipment and it should be done by next month. Then he wants Noah to go into the hospital for three days to have an EEG done for that long to see if we can catch some real siezures,etc. Here is a picture of him all wrapped up for the test.




His other genetic testing came back normal. So we dont have to worry about that. Phew! But now there isnt anything more to test for. So we still dont know why he has these issues. So its comforting but frustrating at the same time.

I ended last term in school with a B+ average. Hip Hip Hooray! Now we will see how challenging two online classes are.

In the job category life isnt so good. I found out last week that as of Oct 4th I with 57 other employees are laid off. CLYNK is eliminating our positions and is going to be self service.... so now no pay check for me. I think Im going to try to watch a couple children in the home but I really dont know. MY schedule is pretty full with Noah and all his appts. I really dont know what to do.

But life is good. And Im really going to try to keep updating this better than I have been. I know a lot of you check it to see how our life is going. We love you and keep praying...the prayers are helping....

Last weigh in Noah weighed in at 23 lbs 4 oz!!!

Looking Up!!

So life for Noah and I is still looking up. This morning we actually got the "Special Tomato" chair that we have been waiting for. It was donated to us by a non profit organization that helps children with equipment. Noah sits so good in the chair.... I can finally get rid of his infant chairs. This gives him more room to gain head control because it sits more upright. It even can come off its base and be hooked to a chair like his very own booster seat! Woohoo... now he can sit at the table with us at dinner! YAY!!! Did I mention he looks terrific in it. Lets's show you, shall we!

Noah is doing so well. He got to see his old Physical Therapist today for the first time since she has been back from Maternity Leave and she couldnt get over how much he had improved. And it felt so nice to feel myself be so proud of him that my eyes were glazing over with tears. I've waited for this for so long. The improvements in just the last two months have been incredible. And the help Im getting now is great. We got the Special Tomato (havent yet figured out the name since I've never seen a brown tomato before LOL) we have a stander ordered and they are working on looking at strollers for him to try him in. Im so glad things are looking up.
We still havent heard any results of the other genetic testing that was done a couple of weeks ago. I'll give them one more week and then call.
My class is about over and I think I did pretty well actually. I'm going to say probally ending with a B average. We will see by tuesday so I will let everyone know. Im taking two classes next term but Im going to continue with the online thing...it is easier and gives me more time with the family.
The girls started school tuesday and Im enjoying taking them to the school bus in the morning and picking them up. Their excitement brings me back to when it was me getting on that bus (LOL) but Megan is excited to have me here to do her hair in the mornings....which I'm having so much fun with....MAarrisa isnt into much girly things but I did get a headband in her hair this morning...we will see if its there tonight.
Work is work.... still just one day a week. I got two days this week. And although the money sucks I kinda enjoy it because it gives me more time with Noah. Erik's sister and law just had a baby and we went and say her yesterday. The baby wieghs 6 lbs 9 oz and is so cute...but the whole time I looked at her all I could think was "Noah was 6lbs 11oz) I dont remember his being THAT little...where'd the time go? I blinked!!!!

Well thats it for now. Wanted to share with you the new and exciting "Tomato Seat" and give you an update. Im going to try to get back to blogging often.

Did I mention Noah is weighing in at 22lbs 14 oz!!! Woohoo!