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Thursday, April 29, 2010

Month of April

The month of April did not go over so well. We had two weeks of hell. The first week we were told that Noah is "legally blind." Although I expected it, it was still very hard to hear. Then a week after that we took him for his swallow study in Lewiston. They tried both solid foods (mashed potato, and apple sauce) and then they tried liquid. He failed all three. He aspirates everything and can no longer be fed by mouth at this point. The speech therapist in the test said that the therapist at home could work with him but at this point Noah shouldnt be fed by mouth. This was very upsetting news to me. I knew he was gonna fail the liquids and was okay with this, however I really really wanted him to pass the solid foods. So we are pumping on a daily basis. Sometimes if the girls are eatting a lolli pop I will have them rub it on his tongue so he can get the flavor or if Im having a freeze pop I'll do the same thing but he cannot have anything he actually has to swallow. However his 3rd birthday is coming up (wow the time goes by so fast) and we are having a party for him this weekend. He loves ice cream. Grampa got him started on that at an early age. So Aunt Linda's making an ice cream cake and Noah is still gonna have a little bit of ice cream on his birthday.
Yes, he is turning three I cannot believe it. I really cant. He is growing so fast. Getting so big. I wish we have had more first's since last year but we dont. He has improved so much though. We are gaining and thats all that matters.
After all the bad news in April, the end of April brought a surprise to the family. It seems that we are adding a new addition. I am pregnant. I am about 7 weeks pregnant. After the shock wore off we are all very excited. Honestly I am nervous too. But thinking positively. We are going to have a happy healthy baby. And everyone keeps asking me what I want this time a boy or a girl. My answer is 100% honest and to the point. I dont care as long as its healthy. Many friends and family pass encouragement saying they have a good feeling. One friend says "God wouldnt do this to me twice, he knows you couldnt handle it." I hope they are all right and I pray every night. Please pray with me. Im super happy. Erik is very supportive and I know this baby will be a blessing. It already is. We are due on December 13th. Right before chirstmas what a wonderful gift.

Wednesday, April 7, 2010

More not so great news!

Yesterday was Noahs eye exam. I was hoping for good news however it wasnt the case. The doctor did a bunch of tests on him using different toys and lights and colors. One test tested wether Noah had a connection with his brain and eyes. There was no movement therefore no connection. The doctor did this test several times not wanting the results to be given to me. Noah is legally blind. He has some periferial vision but no central vision at all. "Legally Blind" is such a little word but such a blow to your heart when you hear it about your child. This doesnt change any of my feelings toward him. I love him just as much as I did Sunday night before we found out and we will work through this. Just as we have done so through the rest of the not so good news we have recieved in the past. Im not going to lie and say it is easy because it is not by a long shot. I spent a lot of yesterday very upset. But we will do everything we can for him.