2011 New Adventures to Come

Happy New Year to everyone. I know that 2011 is going to bring lots of joy and happiness to my family. AS we begin this year I look back on all that I have overcome and know that throughout the next year there will be new adventures for me to go through but I am ready.

Noahs ketogenic diet is going quite well and I am so HAPPY that we went this route on our journey. He is so much more alert and is full of so many smiles!!!
He is gaining weight and along with that is strength. It is so wonderful to see the progress he is making everyday. A few months ago when we picked him up to bring him to the car (or somewhere, anywhere) he would just flop onto our shoulder and lay there. Now it is so hard to carry him to the car because he is very often trying to pull his head up off your shoulder. It is so WONDERFUL. Another wonderful thing that is happening lately is how well he is sitting. Still with help and support but with a whole heck of alot less support than even a few months ago. I can usually hold him with one hand and he holds his head up and sits there. Somedays I cannot do this but the days that I can I really cherish it. He gets tired quickly sometimes but I would give ANYTHING to get his sitting on his own by the end of 2011. The other day I was holding him on the couch and he was doing a GREAT job~ well I slowly eased up on the support I was providing for him until I was giving no support at all. He sat there for 3-4 sec before realizing I wasnt holding him and then threw himself back. But I was so Excited for those 3-4 sec.
The last few weeks we have struggled with siezures again. Some where he stopped breathing and I was getting disappointed but even in my disappointment I told Erik many times that I wasnt giving up on this diet because even if it wasnt providing him with complete siezure control it was giving us so many other benefits with his strength and alertness I didnt want to give up. After some more changes with the formula and meds he is ALMOST siezure free again! (knocking on wood~ he still is having a few but very small ones)
On January 4th we went to Boston and met with an ENT there to talk over the subject of ear tubes with him. We went for a hearing test but were unable to get the test with Noahs conditions. They need to do the test in the OR. So it was decided that FEb 11th Noah is going to have tubes put in down in Boston and the doctor has ordered a hearing test while in the OR and also we will stay overnight to make sure there are no complications. So another adventure here we come. Im nervous about surgery although they say its a very easy and non invasive surgery however with Noahs siezures its always nerve racking to have him under anesthesia but we will be in Boston and I know everything will be ok. While at Boston for the hearing test I did hear something that made me smile. We have been told that Noah will never develop past a 3 month old development. But again we shall prove them wrong. While in one of the test we where telling the women that he says "mom" and sometimes "dada" and "nana" and the women says constanances such as "momma" are more a 6-9 month old development. So maybe there is more hope to hold on to.
School will hopefully be starting soon for Noah CDS will recieve the signed placement form for him this week, and the Morrison Center has a spot open for him. This brings many emotions to play but I am excited for him to get this opportunity. My little man is growing up.
I was looking at pictures tonight of just last year. And its amazing how fast time really does fly. How fast children grow up right before your eyes and you just dont see it (***TEAR***)ITs just like you blink and they are not a baby anymore they have grown into a toddler right before your eyes. I cherish everyday I have with him and although I feel overwhelmed and upset that he hasnt made milestones I have hoped for I never give up. We have proved doctors wrong so many times already I know there are more things to come.

I cross my fingers and hold on to the HOPE that is in my heart everyday that 2011 is the year that will bring so much to Noah and myself. Thanks to all that support and love us. I couldnt be as strong as I am without your support! We love you...