A Short Visit

So Noah is doing ok. After his pediatrician appt on Thursday they said that his "right ear infection is gone." YAY right? Not quite...... well he now has a left ear infection while on an antibiotic to take away the first one. So we had to change antibiotics. We also had to prolong the prednisolone because his lungs sound Better but still not 100%. And today Noah didnt think that was enough for mommy to worry about....he also felt like we should go visit MMC again. This time for a little visit.
The last couple of weeks once in a while he would have a "weird" shake to his head while you were looking at him. Not a huge shake just one that if you looked close enough you could tell something wasnt right. Well yesterday they came more frequesntly and last night into this morning they seemed to be almost constant. So I took him to the ER. The pediatric neurologist said that it wasnt anything to worry about unless it got more severe. To call his Neurologist on Monday to see if he wants to put him on another med. He said that with tapering him off on his Sabril med his infantile spasms could be coming back or it might just be because of the pain of the ear infection. Either way if it was that little of a shake we had nothing to worry about. Well Mommy is still worried and its going to be a long weekend waiting until Monday when they will do something. Part of me is pissed that they are making me wait that long after waiting so long for his spasms to be diagnosed to begin with. But he assured me that they are not hurting him in any way so we will wait till Monday and cross our fingers that it doesnt get worse.
I was at termoil to take him to MMC this morning anyway, since our wrongly accused DHS situation but I knew that MMC had neurological pediatrics on site and I was not sure SMMC did. The neuro ped. that he saw today was the one that read his MRI in Oct. 2007 so I feel a little confident he knows about Noah a little and can somewhat understand him a little more.
Well.... I will keep you all informed and send a few extra prayers this weekend to the big guy upstairs....this mommy needs it....I dont think I can take much more going wrong this week.

Looking up.

Well Noah is back to his normal self because the sleeping through the night has stopped. He still sounds "junky/wheezy" but not nearly as bad as it was. We have a pediatrician appt for him later this afternoon, we will find out what they say. His tempature is gone and he seems to be acting more himself. I just want to get his breathing better. He just got done his Physical Therapy and did pretty well today for not feeling well.Will keep everyone updated.

Hope everyone has a wonderful day.

Getting back to normal

Well.... Noah has been extremely sick ALL week long. I dont think I have ever seen him this sick. There was a couple of nights where I thought for sure he was going to end up in the hospital. LAst night was one of them. He was wheezing so Bad! It was aweful...really scared me. Mom took him back to the pediatricians office yesterday afternoon while I was at work and they decided that although the xrays came back ok they were going to treat him for Phemonia anyway because he was wheezing horribly. The wheezing was causing him to cough almost continuously and the coughing and wheezing was making it hard for him to drink and get liquids. Plus he was still running tempatures in the 100's.
Well waking up this morning........ His temp is 98.6 he barely has any wheezing and he seems more himself..... thank goodness he is feeling better. Woohoo..... tough week.
School started Monday and although Im not sure Im going to like the teacher 100% yet, its something I really love to do....writting.....I should do well..... its an easy term for I am only taking this one class.
Well....thats it for now.....hopefully life will get back to normal soon.

Another Doctor's Visit

Took Noah to the Doctors again today. His temp was still high and he was very sleepy. Well looks like the little guy has yet another Ear infection and they sent us to have a chest xray to see what his lungs look like because he is wheezing too. Man what a week. Still havent got the results for the xray will keep everyone updated. Mommy is exhausted even though Erik gave me a full nights sleep on Saturday and Noah slept most of the night last night.....just a stressfull week I guess. Doctor thinks Noah has a couple more days of temps and should be on the mend. Lets keep our fingers crossed.
Well School tonight. One class....wont be bad.... be out by 8pm. Home and can still put Noah to bed.
Well thats it for now.
Beth

Update

Well.....Life has seemed to take a turn for the bumpy road again. But it could be worse I guess. Noah seemed to start to get sick on Friday. Coughing and "junky breathing", and small tempatures in the 99's. But Saturday morning it took a turn for worse. He woke up and was extremely HOT so I took his temp...... 103.3!!! Yikes. Called the doctor and he told me to give him Tylenol (duh!) and to wipe him down with a cool cloth. He cant have tepid baths because it would take the temp down to fast...we have to take the temp down gradually due to his siezures. Anyway that morning I took him to the doctors office and the doctor said that Noah has the beginning stages of Croup. All weekend he has this aweful cough and is running high temps. He looks aweful and is a little cuddle bug.... more so than usual. Still this morning his temp was 101.6. Will be calling the doctor in 15 minutes to see if they want to recheck him.
School starts up again tonight.....maybe.....it depends on how Noah is doing because Im not leaving him if he has a high temp. I hate leaving his side when he is sick.
Well thats it for now....I'll keep you updated.....
Got the shower steaming up the bathroom to take him in there to help his breathing....gotta run.
Love you all.

Changes

Well Life has a funny way of changing when you least expect it. I was getting used to Noah being on a smooth path.....and all of a sudden today BAM!!!! lets scare the crap out of Mommy! Noah was doing Speech Therapy with his Speech Therapist at 10AM this morning, when I looked at the TV for a few seconds. When I looked back Noah's eyes were glazed over with water and he was just staring into space. I instantly knew that he was having a siezure. But then it got worse. I noticed his lips were turning bluer and bluer. He wasnt breathing. He stopped breathing for 1 1/2- 2 minutes. I called 911 and as I was talking to the women he started breathing. I had EMT's come take a look at him and by the time they got there he was ok. Thank god because it took FOREVER for them to get here. I spent the rest of the day not letting him out of my sight. Staring at his belly to make sure he was breathing. Was in panic mode the rest of the day. He fell asleep right afterwards and slept for quite some time. He woke up and drank a bottle around noon and then started rolling his eye's in the back of his head...I thought it was starting again. But he went back to sleep and slept till 2:30 when he awoke this time full of smiles and babbling. And has acted fine ever since. Im doing ok. Still emotional and stressed. I cant help but think "What happens if he is sleeping and does this I wont be there to see him." He's in the same room but I'll be sleeping. Its so scary. He has an appt with his Neurologist that was already set up tomorrow so hopefully they will do something. I called today and it didnt seem like they wanted to help much. The lady I had got fowarded to was more worried on how I got through on that line rather than Noah. I called again later in the afternoon and she said she would call back when she had got info from the doctor.....and now 7:47pm no call back. NOT HAPPY.

But other than that Noah has been doing ok. The beginning of the month he ended up having another ear infection and some viral infection. I had to give him nebulizer treatments for his breathing....I managed to keep him out of the hospital although it was close calls. When we went to the doctors office on Wednesday last week his ear infection was gone and his lungs where clear.

Finished my term. For the tough course last term "Intro to Special Ed" I recieved a B. So I was happy with that. I have this week off and next week starts the following term. Although Im only taking one course because that is all that is being offered that I need.

So...... I have officially become a Minivan- mom! Thursday I bought a 2001 Ford Windstar SEL. I didnt want a minivan at first but Erik actually made sense. He said "Noah might need to be in a wheelchair in the future and it would be easier to get him in and out of a minivan vs. a the backseat of a car. " It made sense. When I went to try vehicles out on Tuesday after work the dealer brought me for a test drive in the Ford Taurus I was looking at then said"have you ever thought about a minivan" after talking about the girls and Noah. I laughed he showed me the van, took me for a test drive, and showed me all the extras. I fell in love. I have a button that I press and the side doors open and make it easier to get Noah in the car and carry all the bags too. I love it.

Well thats it for now. Wanted to catch all of you up. Its been a while sorry.

Snow, Snow and more Snow

Well its been a little while since I last blogged. Not completely my fault this time. Last snow storm we got hit with the wet snow that sticks to everything and we got about as much of it as we got last night. (10-14in). Well Last sunday we lost power at 8pm on Sunday and we didnt get it back till sometime Tuesday afternoon while I was at work. It was nice to come home to power. Straight into the hot shower I went. Noah had spent the night at Grammy and Grampa's Monday night because our house was REALLY cold. We borrowed my parents propane heater for that night and it warmed our room up and the house and was nice to have. But then this morning we woke up to about another 10-14 inches. And Im just tired of the snow. Ready for Spring.
Noah is doing well. Wednesday he had a pediatrician appt and it was the first time in a while that he got a clean score. Everything was great. No ear infection, lungs sound great, and he gained wieght. The doctor was super excited. So was mommy. Noah now weighs 18 pounds 1 oz. He has missed his PT for the last week and half because of the storms and etc. Hope to pick that back up on Thursday. But mommy has been putting him in his Jumperoo quite often and he seems to love it.
As for me.... I am doing ok. Very tired lately. Noah has been getting up quite a few times at night. Doctor thinks its his teeth and we are still having some pooping issues. The last couple of nights have been better than usual and I hope we are on the uphill side of this issue. Mom spoke with someone who has had a child like Noah and recently lost her child. She was pressing the issue of getting a nighttime nurse - someone who would come into the home and take care of Noah during the night while I slept. And Im just not ready for that. I would feel like someone else was taking my place, doing my job I guess. As a mother you know that you wont get a full nights sleep again for a while and you just learn to deal. I just wouldnt feel good about it. As much as I hate getting up every couple of hours with him during the night it also is more time that I get to spend with him and every second with him I cherish.
My hip has been better doesnt bother me as often. Still have days where it kills me but those are few and far between.
Thank God this term is almost over. I cannot believe how hard this term has been. Usually its hard because Noah gets sick and we spend time in the hospital, etc......Noah has been well most of this term....its the papers. My Intro to Special Ed that I was super excited to take.....well thank god I made it. It was a struggle. Lots of hard projects to get finish. But I did it. One more research paper to turn in on Wednesday and I am done besides the final....woohoo....
The other class was a breeze...... Just like next term is going to be. Hopefully. School could only find one class that they are offering that I needed so thats it next term. It sucks to drive to Portland for one class twice a week but its also going to be a nice break. Taking College Composition 2. Which will be fun for me because I love to write.
My birthday is getting closer and closer....and that just means Im getting closer and closer to 30. Somedays already I feel older than that. LOL! 7 days until Im 26 years old....wow..... time flies.... Looking back at the teenage years I never saw myself where I am today. I knew I was going to be a mom someday. Thats what Ive always wanted but not as soon as it happened and not how. But looking back it really has grown me up. And I wouldnt change it. Noah is here for a reason. Not sure what Gods plan is yet but someday we will know.
Well thats it for now.
Love you all
Beth & Noah