Good Morning!!!

So we had a busy week last week.... Noah is still doing well. We had to get blood work done because he has bruising all over his body and I was worried. The platelet test came back in the normal range however it was on the lower end of normal. Doctor said this would explain to us the reason why Noah easily bruises. He isn't worried yet about intervening we are just going to keep an eye on it.

On Friday I also got a call from the pulminologist office with good news. Noah's lab work for the allergy panel came back negative on everything...he isnt allergic to dogs, cats, pollen, etc. They said the draw came back that he has no allergies to these things however he can still have a sensitivity to some like pollen.... so that is good news..

UPDATE ON MY KNEE: The Orthopedic found that I have a knee cap that is not tracking right. It is slanted and due to the fact that I also have loose joints and because I have more muscle on the outside of my leg than the inside so the knee cap is being pulled more to the outside. I also have arthritis in the knee and swelling. I have to do PT for four weeks and then I go back to see him. My insurance will only cover two days of PT and then its on my own. But I need to work at it. If the PT doesnt help it then surgery is the next solution... I dont want surgery!

Erik got a piece of metal in his eye this week at work and had to go to the eye doctor Friday to get it removed. He was in a lot of pain friday night after the eye surgery but is doing better now. Last night he was able to drive a little bit and he says its more just aggravated now it doesnt hurt. Im glad that he is feeling better.

Noah has a few doctors appts this week too. Wednesday we head down to Boston again. But this time its for his eye sight. We are having a test done to find out just what his brain comprehends. Im a little nervous about this test. Im worried that maybe I dont really want to know the answer to this. I really am hoping for good news but I dont know if I want more bad news either. All I can do it pray that this time its good rather than bad. We have to do this test in Boston because Maine doesnt do this test with patients with siezures. It should be an interesting day.

Thursday we have an appt with his neurologist here in Maine. Which will be exciting to go to because Noah will finally have successfully come off his Klonopin med as of Tuesday!!! We have been working to get him off this siezure med for about a year now and FINALLY it looks like we will be successful!!!

Well...life is good right now and I hope it stays this way!

Smooth Sailing

Noah is doing well right now... he has gone back to school for the summer program and really seems to be enjoying it. The first day of school for the summer I had to drop something off to him and he was all smiles... The nurse reports that for the most part he is staying awake and very vocal during school. Which is nice to hear!!!

Make a Wish came by last weekend and gave Noah his envelope with what wish they will be granting inside....they are going to be remodeling his bedroom...which is very exciting.... They told us that insurance may pay for the bed so if we let insurance cover the bed they would put money into more of the sensory type stuff he needs... I think we are going that root. Things should start happening with that around September!

Well...I have managed to mess up my knee which has really put a snag in our lives... Im on crutches which is difficult enough but then adding taking care of a non ambulatory child on crutches it is even more difficult. Thank goodness my girls are home and I have such a wonderful guy taking care of me when he is home too. Im going today to the Orthopedist to find out what he thinks. It either hurts when I put pressure on my foot or it pops and hurts when I put pressure on my foot. Had an MRI done last week and they didnt see anything but Im in lots of pain. I think I may have hurt it while exercising this year on the treadmill or in the pool because at first it was just hyperextending when walking and I ignored it because I see enough DR's with Noah and it wasnt a big deal. July 3rd I got up from the dinner table and my knee popped and it killed!!! and Its hurt ever since!!! So Im holding my breath as to what this doctor is going to say but ready to find out what is wrong so I can start the road to getting rid of these darn crutches!!!

Other than that summer is great. Spending most of it with the girls while Noah is in school. Spending time with the puppy who is getting big!!! And its fun to teach him new tricks! Just recently taught "PAW". So cute!!!

Love is in the Air!!!

Welcome Home to Great Grammy & Great Grampa!!! Noah is so excited your here!!! And mommy is too!!! We love you!!!