Checking in....

So things are still going well. Noah is still healthy and happy. And Mommy is loving it.... This week has been a busy week for Mr. Noah. Monday he got new AFO braces for his feet. He had grown out of his new ones. He now has Spiderman AFO's to match his Spiderman Sneakers that he wears with them... So he got those Monday and the PT & specialist wants him wearing them 30 minutes a day to start out with in hopes that he will one day wear them for most of the day!!!

Wednesday we went to the PCP for a 3 month follow up. IT HAD BEEN 3 MONTHS since he had seen him! So that was exciting. They weighed him and measured his height at this visit and he now weighs 33lbs 11oz!!! He is getting big!! And he is 41 inches tall!!! Wow!!! I can remember when we were struggling to get past 18 lbs and we have now almost doubled it!!! The doctor was impressed at how well he is doing this winter especially since winter is always our toughest time keeping him from all the respiratory illnesses. Lets hope it stays this way!

Im really working on getting some weight off and have been using a very helpful site called myfitnesspal.com which helps me to keep track of my calories and burned calories thru my exercises. Ive worked out in some fashion for the last 2 weeks only missing one or two days. I've found that I really enjoy going to the pool and swimming to workout and didnt realize how many muscles you use to swim until I went and when I woke up the next day "FELT" all the muscles I had used :)
I also switched to some oral meds for my diabetes right now because I was really struggling with the insulin making me hungry while I was trying so hard to loose this wieght. So until that pregnancy test gives me a positive reading Im using oral medications to control my diabetes for the most part. I am continueing my bedtime insulin but thats fine...
I also have found that drinking more water isnt all that bad.... although I have cut my intake on soda down extremely and have been struggling lately with headaches from the caffiene withdrawal. So Im increasing my soda just a bit and drinking it first thing in the morning in hopes this will help. I will still get in my water I promise but these headaches are really a bummer... I figure I will make smaller adjustments in my soda intake and hope that this helps with my headaches... Erik tells me Im detoxing from soda slowly but surely!!
Just like everything else I need to use my motto "one day at a time"
I lost 1.75lbs last tuesday so I hope that number gets bigger and bigger!!

Things continue to go well....

So far Noah continues to do well with the med change. He is so much more alert and I really think its helping him with his strength as well. Holding him yesterday he pulled himself foward all by himself, caught me off guard! A little coughing this morning but I think his molars are making there way down further leading to more saliva and he is coughing on all that spit. But he has been a happy healthy boy lately. And this momma is loving it.

I started back at TOPS yesterday. Not so disappointed in my wieght gain since August. I did ok. Hopefully my new-found motivation will work for me and I will start shedding these pounds... Started a exercise challenge with the family so hopefully this helps to motivate me as well... Been drinking my water so Im very happy with myself....lets hope it keeps up. I have a picture on my fridge with a saying that reminds me "I have to stop giving myself reasons why I cant and give myself reasons why I can!!!"

Well this is all I have for now. Life is still going great! Lets hope it continues!!

So far so good....

So Noah is doing with the med changes so far. Little to no more siezure activity and he seems to be more alert. One day this week he even stayed awake the whole school day, only sleeping 20 minutes on the car ride home! Very impressed!
He missed two days of school this week due to the snow & ice! :( but he had fun with mommy at home. We got lots of cuddle time in.

Im really working hard at this drinking water goal that I have set. Did pretty good this week yesterday I even succeeded in getting the full 64 oz in! And a workout!!!

Baby Steps here we come

So yesterday Noah had a nuerologist appt. Things siezure wise have been going very good lately. So the doctor was very impressed. He was impressed with his head support too. Anyway Boston had suggested that since he has been doing so good with the ketogenic diet and the clobazam that we try to take him slowly off the clonazapam. Which is a similar drug and this had been the goal when we had started the Clobazam but just havent got to the place where we thought it was safe. Now we are beginning these steps. He is going from taking Clonazapam 1 tab in the morning & 1/2 tab in the morning to 1/2 in the evening and 1/2 in the AM for 3 weeks and if all goes well we will then drop it again to just a 1/2 tab in the PM for 3 weeks and then he will stop it completely! Phew its always nerve racking for mommy to wait and hope when playing with the drug regiment but they are in hopes that he will do fine and the clonazapam has more side effects than the Clobazam that we will keep him on. We can only hope that this works. Pray everyone!
Then he had a chirpractor appt yesterday as well and the Chiropractor was very impressed with how well Noah is keeping his neck adjustments. Things are looking great and hopefully soon we will be working on helping his scoliosis. But he wants to see Noah holding his neck adjustments for two weeks before continueing on other areas!

2012 has slowly got me working on a better me as well...Little revelutions are being set... One is I need to begin to drink more water rather than diet soda. Diet soda is an aweful addiction that I have and I drink WAY to much. So Ive been striving to get at least 32- 50 oz of water into my body...with the hopes that I get to the full 64 oz Im suppose to get into me! This will also hopefully help me with my mini wieght loss goal of 25lbs. I really need to work on me a little bit. Im not happy with myself and I know Ive dealt with a lot these past few years and this is probally part of the issue but now that Noah is in school 5 days a week I have no excuse why I cant take a little "mommy time" and work on getting me slimmer and healthier.
So I will keep you updated on my progress as well as Noahs progress.

Family life is going very well...the girls are growing up so fast. Marissa turned 13 on New Years eve and I cant believe I am being the mother to a teenager already! She is doing basketball this year in the 6th grade team and she is doing so well. She loves it.
Megan is doing well as well. She is getting ready to start Hip Hop Dance Class and I know she will enjoy this as well. She just got thru having both ears rupture from an double ear infection and was sick all last week but she is doing better! PHEW!!!

Erik is being kept really busy at work lately. Long hours and long days! Which is good for the business and the job security. It has been a great opportunity for him to become Plant Manager and it gives him opportunities to do some traveling for work which makes it hard sometimes not having him home but he is enjoying it and it gives me some good quality time with the kids. Ive always wanted a family of my own and I now have it and I love it. Hopefully 2012 will be the year we have waited for...Lets keep Noah on this healthy path and my family happy and healthy too!

Happy 2012

Well....another year has gone past and its time to look to the past year and remember the journey.

Noah really started out having a tough time in 2011... February we came really close to lossing him he was so sick. But he is a fighter and we got thru it. Then when he was well enough he began Preschool. What a step that was for mommy! But The Morrison Center Preschool really has been so good for him. He is getting so much stronger and I luv to see how much he is accomplishing...although to some eyes it may be small...to mommy's eyes he has accomplished much. 2011 Summer seemed to go without a hitch. We did try to do a Spaghetti Dinner supper but it just was to hot a day for Spaghetti and the turnout wasnt great. However we do appreciate all of our family and friends that did come out and support us. September and October we ended up in Maine Medical with phemonia and I thought that we were gonna have a tough time this winter. So far (knock on wood) things havent been that bad. December we finally switched completely to Home Hope and Healing and discharged Maxim Healthcare for services. And we became fully staffed for nursing care. And I have to say I am exciting and thankful that I relly truely believe we finally have an awesome nursing staff in our home. Christmas came and went and this year it was so exciting to be able to buy Noah some toys this year instead of just clothes.

Noah is still on the ketogenic diet and is thriving on it. Before we went on this diet he was siezuring 9-10 times a day and they were the "big" stiffening siezures. Now on the ketogenic diet it seems he is only having siezures 1-3 times a week and most of his siezures are the smaller sleeping siezures versus the stiffening ones. So this diet is worth all the work that we have to put into it. He is also gaining weight and growing on this diet. Last weight was 31 lbs amd 42 inches long. He is getting to be such a big boy.

Now 2012 is here. Another year ahead with more journeys and trials. I would like to believe that I am ready for it. I hope that Noah being so healthy this year continues and 2012 is full of happy surprises. I keep telling him that with this new found strength in his head control mommy wants him holding it up by my birthday. :) That would be such a wonderful gift. January Noah has started going to see Dr. Paul Newton in the Biddeford Chiropractic. We originally went there in hopes he could help with Noahs scoliosis, upon examination he found that Noahs neck was extremely out of place and we are beginning with fixing this issue first and then he will work with the scoliosis. Maybe getting his neck alligned will also help with him holding it up better too.

I thank you all for your support! And I always know I can count on everyones support. This one fact has helped through the past years and will continue to help into 2012.