Happy New Year

Hello Everyone!

I hope all had a wonderful christmas and I hope everyone has a wonderful New Year. Noah is striving. We have had an issue with Gas and not being able to get some gas out of him. Because if the Nissan surgery he cannot burp therefore when he has gas we have to vent him using his G Tube. Sometimes lately we cannot get it all out and he is having spells where he is in alot of discomfort. But we keep working on it and finally we can get it out for him. But the good news...the great news it WE HAVE NOT HAD TO USE THE TUBE TO FEED HIM FOR 3 WEEKS! Thats right Noah is finally drinking ALL of his bottles without a fight. In fact he is drinking more that the 100mls that he is expected to drink. More like 120 to 130mls. He doesnt want to stop drinking now. He is back to having cereal mixed with fruit now at bed time and occassionally in mornings too. He also is drinking juice because there are some days where he doesnt want to stop eatting. He has occasions now where he tries to hold his own bottles too. :) Physically therapy is working with him lifting his head...and although he still doesnt like tummy time he is doing much much better holding his head up. We are on our way! Its exciting to see hsi progress.
The rest of his blood tests come back on Jan. 17th and I am holding my breath and praying. I cannot take anymore bad news. So keep praying the prayers are working.
Hope this finds you all Happy and Healthy!

A Cup of Good Cheer!

Just to give everyone a quick update. Noah has had a double ear infection for the past week and 1/2. So things have been a little more complicated. But after the first medication was not effective they put him on something a little more stronger and that seems to be helping. Physical therapy is coming in once a week and working on his head control and he seems to be really improving on holding his own head up. He is gaining more weight and is beginning to become that chubby little baby we have all waited to see.
Christmas is coming and the tree has presents under it already for the little guy and myself....cannot wait for Christmas morning to spend with the little guy.
That is all I have at the moment. Please keep the prayers going and thanks for everyone's support I couldnt do it without all of you.
Love to all.
Happy Holidays!
Beth & Noah

Two Posts in One Week

Two posts in one week you all must be proud!

Noah is doing well. I have dropped his feeds to 100mls right now until he gets over his ear infections. But he is gaining weight. Very exciting he has outgrown his 3-6 clothes and now is wearing 6-9 clothes and they actually fit him! All the prayers are helping.

I'm very excited for his first christmas...been putting him in cute little xmas oufits the last few days. Took some pictures with him today. He loves to look at the lights on the tree...and he is becoming more vocal when awake. Working on his neck muscles giving him tummy time. He doesnt like it very much but we have to get those muscles working.

He has moved on like I said in the last post into size 2 diapers....I thought we were going to be in 1's forever. But he is so much more alert now and talkative. He still doesnt know what sleep is. He is still getting up quite a bit. Right now we are going through a stage where he doesnt want to sleep in his crib he wants to be with me. That isnt going to last because although I love the extra cuddle time...I get better quality sleep when I'm the only one in my bed. But lately it has been either let him in or spend all night fighting with him. I'll chose the getting a little sleep.

Other than that everything is going well. Its a little more work with this pump but so worth seeing the improvements. Thanks to all that is praying it is so helpful. And we need all the support and prayers we can get. The lord hears us! I just know everything will turn out ok. I just gotta have faith!

I'm trying very hard to keep everyone updated and trying to get on as often as I can. But between work and home life it gets a little hectic sometimes. Dont stop checking because I'm not going to stop typing!

Love to you all!

Road less bumpy!

Well my little man is doing pretty good. No scares lately. Well thats kinda a lie, but that is a long story....but Noah is doing well. He has a double ear infection right now that we found out about on Friday because he decided he couldnt drink the 110ml's and was fighting us again. So Grammy took him to the DR.'s office before they closed (mommy was at work) and the DR said both ears where red. Later that night (here comes the scary moment...all brought to you by mommy) Friday night I went to put Noah in his crib for bed and as I lifted him into the crib I caught the G Tube between me and the crib without realizing it and when I layed him down yanked it right out! He screamed and I got upset....and we couldnt get it back in. So we ended up taking a trip to SMMC to have a DR put it back. And let me tell you that the DR's say "oh its easy if it happens just put it back in..." That wont happen. You really have to push and the DR doing it said I wouldnt have got it in myself because he gets upset and pushes with all his might his stomach out and it was really hard to get it back in. I felt like the worlds worst mom! Let me tell you.
But he is doing well.... in 6-9 clothes now and Size 2 diapers! Very excited! Got his 6 month pictures done. Wouldnt smile for mom but the pictures are adorable!
Love to all! Keep those prayers going..... Mommy is praying for miracles!