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Friday, December 30, 2011

Wishing for a Happy & Healthy 2012

Noah is still doing well. He is growing so fast but this winter so far has been healthier and happier. November and December went smoothly. He did get a small head cold in December but seemed to do ok with it. We havent had to go to the pediatrician in 2 months. (knock on wood)

His head control seems to be stronger and we can only hope that 2012 will be the year his head control is developed. We will see. Im just happy for the things he has accomplished in 2011. Going to school 5 times a week in itself has been a huge accomplishment. And I think school is helping him so much. I cannot believe its time to start talking about kindergarden already. phew where does the time go....

Christmas was nice this year. Noah even had TOYS under the tree that he can play with. He got an Elmo guitar that he just touches buttons and it plays...and he also got a Cookie Monster piano... he also got some musical books. We had so much fun with him this christmas. Noah even made his own christmas cookies this year. It was so much fun. He was covered in flour by the time we were done. And he was all smiles. So cute!


Siezures have been doing alright lately. He had one last night that was pretty big lasted 3 minutes and we had to use some adivan but other than that we havent had to use the Adivan for a couple weeks. :) Hopefully this continues for 2012!

Well we hope all of our wonderful Family & Friends have a Happy & healthy 2012! We love you.

Mommy got a new laptop for xmas so hopefully this means that she will be online more often and can update this blog more often!

Wednesday, December 7, 2011

Christmas is coming!!!

This year is exciting because Noah is doing so well. (knock on wood) and because of school I have some great gift ideas for him. He doesnt have to get "just clothes." So exciting.

We had a Boston Trip last week for Noah and he is doing so well. They were all impressed. They did some blood work to make sure everything looked ok after being on the ketogenic diet for over a year now and I got the results on Thursday and everything looks ok. They are increasing the diet calories by 100 per day and increasing his pumping rate to 55mls/ an hr instead of 50mls/hr. He has grown a cm in hieght but didnt gain any weight. "Go figure" that has been a struggle since birth. We are keeping him on the diet because I think it is helping and hoping to decrease his Klonopin until he is no longer on this med and then we will work to taper him off the Zonisamide. I would be so excited to be able to get rid of two meds!!!! AS long as siezures dont get worse of course.

School is going well. He is pretty consistant with attendance this year and seems to be improving. He is doing better with head control it is still not there but he is getting so much stronger! :) Little steps is all I ask for! He is in visual therapy now and seems to be doing well with that. So happy! He is enjoying the christmas lights on the tree this year. :) :)

Well that pretty much sums everything up for now. We love you all!