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Wednesday, December 7, 2011

Christmas is coming!!!

This year is exciting because Noah is doing so well. (knock on wood) and because of school I have some great gift ideas for him. He doesnt have to get "just clothes." So exciting.

We had a Boston Trip last week for Noah and he is doing so well. They were all impressed. They did some blood work to make sure everything looked ok after being on the ketogenic diet for over a year now and I got the results on Thursday and everything looks ok. They are increasing the diet calories by 100 per day and increasing his pumping rate to 55mls/ an hr instead of 50mls/hr. He has grown a cm in hieght but didnt gain any weight. "Go figure" that has been a struggle since birth. We are keeping him on the diet because I think it is helping and hoping to decrease his Klonopin until he is no longer on this med and then we will work to taper him off the Zonisamide. I would be so excited to be able to get rid of two meds!!!! AS long as siezures dont get worse of course.

School is going well. He is pretty consistant with attendance this year and seems to be improving. He is doing better with head control it is still not there but he is getting so much stronger! :) Little steps is all I ask for! He is in visual therapy now and seems to be doing well with that. So happy! He is enjoying the christmas lights on the tree this year. :) :)

Well that pretty much sums everything up for now. We love you all!

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