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Thursday, March 20, 2008

I cant believe he is almost a year old!!!

Almost a year old and he has come so far! He isnt completely there yet but he is such a strong little boy. Growing up so fast. He now weighs almost 16 pounds and he is striving. The physical therapist actually had him putting wieght through his legs the other day. At first she had to help him by locking his knees for him but by the end he was doing it mostly by himself....man did he look all grown up standing by the couch!!! Lately it has seemed the day for which he holds his own bottle is getting nearer and nearer both hands keep coming close but not yet!!! Soon though! He is off the steriods and at first his appetite decreased and we were worried but it seems like lately he is getting that appetite back. Mommy is helping that along by letting him try stuff off her plate once in a while LOL!
PT is still coming in twice a week and it seems to be helping. OT is coming in once a week. We are making progress!!! Thank God.
I'm getting Noah baptized on April 13th. It will be a very special time. Thank you everyone for praying and keep doing it please. We are not completely out of the water yet!!! There is still a long road to travel. But we can do it.
Noah's hair is getting SO long.....I was going to wait until he was a year old to cut it....but I dont know how much longer I can hold out....I know its only two months away.......but its driving his mother crazy.
His siezures have not stopped. We are still trying that new drug that I was talking about last time. WE keep increasing the dosage. The doctor started him out on a very small dose and it seems to have slowed them down but it hasnt got rid of them. So we have increased it already once and the doctor today increased it again. I'm praying that it helps....Im praying that it stops them.
Well I think that is everything right now. Life is going good!!! And I pray it stays going like this!!!
WE both love you all! Happy Easter everyone!

1 comments:

Anonymous said...

Noah looks beautiful! It's been so long since I've seen him! Your comment about him having a tough life so far and him being a strong little man really hit me. Indeed he has and he is! He doesn't know life any other way. He knows mom, grandpa, grandma and great grandpa loves him SO much as well as all of his TOPS family! You keep doing what you are doing and we'll keep praying! Happy Easter! Best to you and your family!