Noah has had a tough couple of days but is doing okay. He has been running some fevers and some of them are quite high so they have came in this afternoon and done some labs to check to see if he has an infection. They are also treating him for an ear infection. We gave him his first bottle (if you want to call it that) it was more like 20mls at around 4pm tonight and so far that seems to be going well. Tomorrow they are going to be taking the epidural out and we will see how he feels then. Today he seems a bit more cranky but is much more awake than yesterday.
We met with a car seat specialist who is going to help find a new carseat for him because he is growing out of this one length wise. We will be able to see some demo's and see where we get with her.
We are also going to see a cranial specialist that is almost like a chiropractor while we are here to talk about the things he does and how they could help us. This doctor does manipulations of the skull and this is known to help with cronic ear infections and could even help with his feedings.
Another thing that we are going to do while here is redo the Feeding Study. The Speech therapist that works with us here thinks its a good idea. She was at the first one and thinks that if he really aspirated as bad as it showed we would have more problems with sickness. So she wants to do it again. And I would love to have it done again as well. Because part of me doesnt think he has a problem we still give him juice unthickened and he has done fine with it so far.
Well that is all for now. We have had some great nurses this time. He is doing ok. And Im tired but doing fine.
Thanks for all your thoughts and prayers. and please keep them coming.
Love you all
Beth & Noah
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