Rough time

Tuesday I got a call at work from mom saying that Noah had blood in his diaper from urinating. We rushed him to the pediatrician who sent us for some tests. We had a ultrasound done on his bladder and kidneys and also an xray. They also took a urine culture. The results came back as normal for all except that there was infact blood in the urine. We were scheduled to see a specialist.
Noah decided he had another idea. It came on quickly this time and is a rough one. Thursday night Noah began running a small temp and wheezing a little bit before bed. We gave him a xophenex nebulizer treatment and tylenol and went to bed. He was up every hr having some issues. His temp was getting higher and higher and his heart rate began racing over 200. At 7 am Friday morning I took his temp and it was 103.2 and his heart rate was 210. We got a ambulance ride to MMC.

They found that Noah had a very SEVERE phemonia. The worst that they have ever seen Noah have. They also did some lab work and found that Noah had a bacterial blood infection. He was strarted on IV antibiotics. They also did a ultrasound and found crystals in his urine. The beginnings of kidney stones. He is at risk for these with the ketogenic diet and one of his anti siezure meds. They have been flushing out his urine with IV fluids and started him on a med to help prevent this today. For the past 3 days while in the hospital Noah has not been himself at all. Sleeping all day only stirring for brief seconds and then sleeping some more. I kept questioning this but the doctors felt that it was due to him being so sick. Today I brought it up again because he really never awoke yesterday at all, and this worried me. The doctor ordered an EEG right away. The results came late this afternoon and it showed that Noah was having a continuous siezure-- never coming out of it. This making him sleep and hard for anyone to notice. He was given IV adivan (two doses)to hopefully stop them and the team of doctors were surrounding him immediately ready to take the next steps if need be. He was hooked up to a 24 hrs video EEG. The doctors waiting to hear if the siezures were being controled of if Noah needed to be brought to the ICU where they would put in a breathing tube and give him stronger meds to get these siezures under control. The DR said that typically these siezures types will not cause damage to the brain, that it is more the convolsive ones that do. Im worried because we dont know how long he has been having them it could have been the whole three days hes been sleepy.
Luckly, He began to slowly begin showing short bursts of himself. The doctor came back and said there was improvement and then they decided to give him some IV Depakote because his Depakote level was low. And then it was a waiting game still. Just a few minutes a go a resident came in and told me she had just got off from the phone with the DR and he had said there is no siezure activity at this time. Hopefully it stays this way when the meds begin to wear off. Tonight is touch and go and will be a long waiting game. Please keep him in your prayers. I love him so much. I am so scared. Hopefully he will come out of these siezures, get healthier and be home before we know it. Hopefully these siezures have not caused any brain damage and he is the same smiling handsome boy he was. We can only hope and pray and wait.....