Team Noah!!!! And Life!!!!

So May 17th we participated in the 2nd Annual Epilepsy Walk 2009 in Saco, Maine.
Team Noah raised in total: $495.00
Alisha & myself raised money
Walkers included: Erik Goodwin, Marissa Goodwin, Cindy Quint, Charlie Quint, Matt Kearns, Alisha Phillips, Myself, Courtney Frazier, and Noah. Before the walk it was raining. I thought we were going to have a wet walk but right before it stopped raining and the sun came out for a little while. After the walk it began raining again. So weather wise it wasnt the best conditions but it stopped just in time and there was a decent turnout. Thank you to all the people who donated or participated in the walk. This walk means a lot to my family. Next year I hope to have a even bigger Team Noah!!

Noah is doing ok. He has had an ear infection for quite some time. Last Thursday, Friday, and Saturday he had to have an antibiotic given to him in shot form. Yes 3 shots in three days. The other medicine wasnt working for him, he ended up getting a double ear infection while on medication for the first ear infection. The shots seem to work, we went to his 2 year check up on Monday and he had no ear infection. Ended up taking him back to the doctors on Thursday because this week has been HORRIBLE. No sleeping....fussing all the time....not eatting..... thursday found out he had the beginnings of another ear infection and a viral infection.
Doctors dont really want to do tubes in his ears because of his siezures and the risks of anestesia...but if we keep having to give him shots, we might have too.

We got some more news on Noah this week. Dealing with genetics...Ive been pretty upset about it this week. I had another blood test done on him two weeks ago. Results came in and it looks like Noah is missing a tiny piece of his chromosome #2. There isnt a lot of research done on Chromosome #2 and to know more they need to get DNA from both Josh and myself. Im really upset that we have come so far and we are going to rely on Josh on wether or not we can get the answers we need. I hope he will step up to at least help us in this mission. Im scared he wont. I hope Im wrong.
Im getting my DNA work done on June 22nd so we will at least have some answers after that.

Noah seems to be having more siezures lately. The little shakes again. Been trying to keep an eye out. Nothing major lately...and Im crossing my fingers....but Erik has even agreed that he seems to not be himself lately. Staring off more and long empty stares...... I wish they would get under control.

Just using the O2 monitor at night. Had to stop using it in the car rides because his toes were getting sores on them for having the probes on them to long.

Thats it for now. Keep praying...siezures dont get worse.....Josh agrees to the DNA stuff...... I need answers for Noah and his family and love ones.

We love you.