Rough winter!!!

This winter as you can read in the subject of this blog has been a rough one. Noah has been sick with something one after another. Mostly we have had three phemonia's in the last 3 months, a viral cold close to another phemonia, and a few retching episodes. Its been very stressful for me and I cannot wait for spring in hopes Spring brings better health. Just last week we went through the viral cold that was very close to phemonia in my opinion. We had many nights of steamed bathrooms for 15 minute episodes, vaporizers, lots of suctioning of his saliva, pounding on back, etc. His stats were very low at night dropping into the med-high 80% oxegyen level and sometimes dropping as low as the high 70's. Very scary. He does however seem to be doing better this week. (knock on wood) He still seems congested at times and has a horrid cough at times but his stats have been in the high 80's to low 90's so Ive been happy.
We started night time nursing last week. Last tuesday to be exact. And I have to say that it has helped so much. The first night I was a reck and didnt sleep very well...worrying and having nightmares about leaving him with someone new. But after that night and seeing how well she does with Noah has relived my worries and Im getting the sleep Ive needed for a long time. The nurse we have is great she is very attentive, and when he wakes up with her at night she gets some PT excersises in and reads to him and cuddles him of course. She seems to be a good fit for the family.
I did go see the specialist for my foot and luckily no surgery as of now. However he was lovely enough to put a Cortisone shot into the bottom of my foot. MAN THAT HURT! but it is doing better now. I have plantar Fasitis meaning tendons in my arch are severely strained and tearing. PT excersises and the coritsone shot and it should get better. Hopefully. IT does feel somewhat better however since the shot Ive been struggling with charlie horses at night in the bad foot. Nothing seems to help. So hopefully that goes away the more I do my PT.
Noah has been set up for another swallow study. I am really Really nervous and stressed about it. They think that his aspirating has got worse and this is the cause of the increase in phemonia. I cried in the office when it was suggested we redo this test. This is the fight Ive been having since he was 6 months old. I want him to be healthy and I do want to find out but I just dont want to take food by mouth away from him. I agreed to do this test on one condition and that the test be done by a different hospital other than MMC in hopes for an unbias opinion. I have really worked and fought hard on Noah drinking bottles and eatting by mouth and it scares me to get this taken away. His appt is April 14th at Central Maine Med in Lewiston, ME. Erik and I will be bringing him and Im really praying that it is okay news. I have decided that as much as I would hate it Im ok with them telling me he cannot drink from a bottle (as tears stream down my face) as long as they say its still ok to eat icecream ( he loves it thanks to his grandfather LOL) and solid foods. Just this one thing is all I pray for everynight.
We also have an appt scheduled to an Orthepedist to look at his curvature of his spine. This is scheduled for April 26th. I hope this is not bad news as well.
Noah is now set up with Case Management services now and the lady we met with seemed to be great in that she was going to help us to get some great things. It feels good to have someone on my side who can help me now.
So March seemed to bring adventures through the sickness realm....Im hoping and praying for April to bring good news, answers, and health.