Update on Life

So as usually things can change quickly in the life of Noah. We are struggling again with siezures. He is having them quite frequent. They are the little ones... the tremors and staring spells but he is doing it very frequently throughout the day. Two weeks ago I requested an EEG on him and the doctor says the frequency has increased greatly since January and he is requesting that we be seen at Boston's Children's Hospital for a possible trial of Ketegenic Diet. Which is a high fat low carb diet for children with siezures that helps the body fight the siezures. So August 23rd we go for our first appt in Boston. This is a 3 hr evaluation and consult. A month later we will go into Boston Childrens Hospital to be put on this diet. We will stay for 4 days admitted into the hospital. Then when released we need to go back two weeks later for follow up, one month later after that follow up, and then every three months after that. Lets hope this works. If it works there might be a possibility that we can take him off from some of his meds. That will be a relief.

Brought him to the doctors yesterday with a temp, retching, and etc. We found a right ear infection again!!! It seems like every month we go through this. I have decided to get a second opinion on Tubes and this appt is being set up.

There has been a huge decision brewing on the Noah front.... We have been researching putting Noah in a specialized preschool. ITs called the Morrison Developmental Center in Scarborough Maine. This is a low functioning preschool setting. We took a tour of the facility last friday. The center has a few kids in it that reminded me of Noah. And when talking to the Head Teacher there about Noah and his special needs I said " He has siezures that makes him stop breathing..." She spoke up and said " your gonna have to try harder to scare me" and one huge wieght was lifted off my shoulders about this situation. There is a nurse in the room most days and if I can get approved I can have a special nurse transport to school with Noah and stay during the day with him too. ITs a HUGE decision that I am struggling with. It is an ABSOLUTE amazing option for him. Learning wise I think it would be fabulous. He would get therapy there everyday most of the 3 hrs he is there... the only struggle is bringing him into the public and making it possible for him to catch some sort of virus that he will not be able to fight off. Can I take that chance? I dont know that answer yet. I need to really think that through because I dont want to regret it later if something were to happen to him. But he seemed to really like it there when we were touring it. He was smiling and very alert to all the new sounds around him. And that tells me I should just do it. ITs just hard to let go. But knowing that he will be enjoying himself and learning really helps to know.

I finished my schooling. I officially hold an Associates Degree in Early Childhood Eduacation. I have a job interview on August 25th for a Assistant Toddler Teacher in Portland that Im crossing my fingers for. We will see. Very exciting.