One Step Foward Two Steps back

Noah did so well last week. He was off 02 and almost siezure free.... smiling and babbling...Life was so great! I was so excited...I couldnt say it enough "Noah is off 02" and then Saturday the siezures began again....and then yesterday he started requiring 02 again and we are back to square one. It is so frustrating some days I just want to scream at the world....I know deep down that needing 02 isnt the end of the world for him but it just sucks... I thought we had proved the doctors wrong again. I thought we overcame it... His birthday is tomorrow..... 5 years old...I really cannot believe it....Its been such a journey of ups & downs and its been worth every minute... He is a fighter and Im so proud of everything he has accomplished in these 5 years. Im proud to be his mom. He is such a special little guy.... and he brings so much joy to my life.... Preschool graduation is coming....June 8th...wow....what a accomplishment for him!!!