Update

So Called the neurologist on Monday and he decided it was best to start Noah on a new medication called Keppra while still tapering him off of his Sabril. The shakes have seemed to slow down but he is still having some throughout the day. He also wanted Noah's EEG rescheduled for a sooner appt.
Meaning TODAY! So this morning I had to wake him up at 5:00am and keep him awake until the appt (which was scheduled for 7:30 am). Notice I said Scheduled.....it drives me crazy when they have you do this kind of test and tell you to keep him awake and then make you wait in the waiting for a 1/2 hour past the scheduled time of the appt. But we got in there and although VERY unhappy and VERY hungry (because mommy couldnt give him a bottle until they started because he would fall alseep with it.) the test went successful. He drank a bottle while they put the wires on his head and then fell asleep shortly after they started recording and didnt wake up until we woke him up after it was over. The EEG Technician said that she didnt see any signs of hyperithmia this time.....meaning he has improved from the last two EEG's but we need to wait to hear from the neurologist before we get to excited about this news. I was hoping he would do one of the shaking spells while hooked up but that didnt happen. His follow-up appt isnt until May 7th but I will try to reschedule that to a closer date.
He seems to be feeling better, still has a cough but doesnt sound nearly as wheezy. He has a follow up pediatrician appt tomorrow so we will see the results tomorrow. Cannot wait till his medication schedule is back to normal meds. LOL!!! I made a list on the fridge of meds and end dates, doses, etc. because its just crazy right now!!!
Other than that Life is good. Mom, Dad, and Grampa leave for vacation in Florida on Friday and we will miss them while they are gone. I've tried to get one of them to allow Noah and I in their suitcases but they just wont let us. LOL

I cant believe that Im beginning to make plans for Noahs 2nd birthday party. 2nd Birthday!!! Wow....exciting! The other night it made me think back to how fast it seems to have gone by but at the same time how much he and I have gone through together. And how much we still have to go through.

Well...thats it for now!
Love you all