Another Day at BBCH

Noah is still about the same as yesterday. He is still very sleepy, however has woke up for a few minutes with some expressions on his face & some interaction. Not much but some...
He had a rough night last night with breathing and needing nebulizers to help keep his O2 stats where they need to be. I didnt get a whole lot of sleep last night he kept me, the nurse and the respitory therapist on our toes.

After rounds today the doctors say we are here for another night at least. We are all in agreement that Noah needs to be a little more at baseline before we go home. Meaning he needs to be more awake. The oxegyen requirement doesnt bother me it is the fact that he wants to sleep all day. So hopefully we find out sooner or than later why he is sleeping so much.

7:15pm

So today Noah has seemed to be doing better. He was very constipated so we gave him an enema to help him be more comfortable. I tried to ease up on the tylenol and ibruprophen too to see if this helped him to wake more. He has woken a little more today. He only stays awake for 15-20 intervals at a time but its nice to see eyes and see "some" interactions..... His tempature has been in the 99's today which is still a small temp for Noah since his normal temp stays around 97-98.....but much better than 100's.
The neurologist is suppose to be in sometime tomorrow to see him and talk about what he thinks would be a good plan for Noah. He spoke about reducing the Clonazapam dose again to see if this would help decrease the sleepiness but I want to talk to him before I just agree to this change. He comes off the steriods after today and hopefully he continues to do ok and not have any problems with ketosis! Crossing fingers~~~ so far so good.