Noahs Progress

Noah has had such an awesome summer. I love having months like these. He has been alert and happy and healthy. We went two whole months without seeing any siezures and he did so well at school this summer.

However all good things must come to an end sometimes. He is having spells again which I am convinced are siezures. I dont know for sure but I called the neurologist and he thinks that I could be right. We are going to schedule him to have a 24 hr EEG again to find out. Lately he sleeps most of his days and is having these twitching spells.... :( I am so disappointed. I hope that tweaking his meds again will help. The doctor is on Vacation this week and the receptionist says he is booking out into Nov/ Dec and Noah just cant wait till then. Gonna call when the DR is back from Vacation.

We took a trip to Waltham MA a couple of weeks ago to meet with the Ear Specialist again. Noah is scheduled for Ear Tube surgery on Sept 30th. We will be going for a pre-op appt on Sept 29th and staying over night for the surgery. Then Noah will be staying overnight at Boston Childrens Hospital for observation! I hope everything goes ok. Keep him in your prayers. While under anestesia in the OR they will be doing a hearing test as well just to re-check to make sure he can hear ok. Im pretty sure he will pass this test!

GOOD NEWS!!!!

Starting Tuesday Sept 6th Noah will be going to preschool 5 days a week at Morrison Developmental Center. He went 3 days last year and we got the opportunity to try 5 days this year. Which is exciting. He has improved so much since beginning school I think it will be really good for him. Yesterday was a bittersweet day because it was his last day with Home Health Visiting Nurses Physical Therapy and Occupational Therapy because he is going to get his services at school and start a new chapter in our lives.
Bittersweet because Lana Our PT has been with us since Noah was 6 months old.
There were tears and laughter remembering the good times....and she is gonna be greatly missed. but this again is going to be a promising opportunity. It means Mommy wont be able to cuddle him as much...and I have to let go a little more, but I know its for the best. I even have nursing and transportation this year set up as long as everything continues to go smoothly. So Ive been really trying hard to get my Diaper Cake business running. I put my ad in the local newspaper and got business cards and Ive been beginning to get calls and orders. Exciting. When Noah starts school I plan on making some diaper cakes up and bringing them to some stores who in the past said I could place a couple on their shelves but I just havent had the time to get some there. Check my webpage out www.mainelydiapercakes.com

Hurricane Irene was quite the storm for us hear in Lake Arrowhead. We lost power for 68 hours or so. It kept things interesting. The candle light flickering seemed to not help Noahs siezures at all. And I dont think he understood why we werent turning lights on so he would sleep. We borrowed a generator from a friend however the first one didnt work. Patti Reed (my friend since kindergarden) let us borrow her generator Tuesday night and it worked great and helped us out a GREAT deal! She was my hero this week.

Well I guess thats it for now. Hopefully now with internet( I lost it for a while) and with Power back, and with my afternoons free-er with Noah in school I will try to be better at keeping this updated.... I really will try Grampa & Grammy! We love you all.