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Tuesday, March 27, 2012

Things Looking Up Again

Noah is doing ok. He is still on 02 but he is his happy smiling self and besides a few small siezures here and there he is doing good. PCP is even talking about sending him back to school at a reduced amount of days than he had been going but still returning to school maybe tomorrow. We still have times during the day in which he is filling up with salivia and needs to be suctioned but only small amounts of time. PCP thinks it just might be last weeks heat and his siezures acting up a little. But like we have said before we would rather some siezure activity and more alertness so it comes with the territory...

Noah and the family has a new member of the family. We got him on March 17th and although he keeps me busy during the day between himself and Noah we love him and he has brought more laughter and smiles into the home. Expecially while things have been so tough lately., He is good for the soul!



His name is Barkley and he is 9 weeks old. He loves Noah and is already his watch dog. If Noahs machines start alarming he is the first one by Noahs side. ITs really cute. When Noahs in his chair Barkley sleeps at the bottom of his chair....

Had a scare last week when Noah started getting congested. Thought he might be allergic to the dog. After going to the PCP he didnt really think that it was allergies. I asked him to run the blood test anyway to be sure. They were going to run one that showed if things were elavated which would say he was being exposed to something he was allergic too. If this came back elevated he would run a more in depth panel to find what allergies he has. Waiting for results.....but his congestion has been better so Im thinking that it probally had a lot to do with the heat..we may be in for a long summer....

We recieved great news last week. Noah has been approved for a wish from Make-A-Wish. We should be having a meeting real soon with a couple of staff members called Wish Granters and they will help us to figure out what Noahs wish is going to be! Very exciting. Have no idea what he is gonna wish but it will be fun!

In the process of working on getting a fundraiser dance in the works. I have a very wonderful women in my Community named Gina who is helping me to get this set up. So we are in the beginning stages of this and a few other fundraisers to help us to raise money for Noah and any future needs that arise! Busy few weeks!

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