Tough News to Handle but not the worst

Unfortunately yesterday we didnt get good news yet again..... Noahs blood gas test came back at the top level of normal. So it isnt bad enough to have to talk about having to interviene to much yet but it is a scary thought that his lungs are slowly failing.... :( they said they havent given up hope that this 02 requirement isnt Med related but we need to prepare ourselves.

The doctors also said we have to find our priorities do we want Noah siezure free and so drugged up hes sleeps or do we want him alert and having some siezures. I want him alert and able to enjoy some of what life offers...

After having a night to deal with my emotions and etc... I know that even though it wasnt the best news last night we still have Noah and thats all that matters. If he needs to be on 02 for the rest of his life ----thats what he needs! And hopefully thats the only thing we will have to worry about for a long while....We need to enjoy him while we have him and not sit and worry when r we going to loose him.... and Im going to work on this fact......and u know we've had drs tell us things before and Noahs proved them wrong HE CAN DO IT AGAIN!!! My birthday wish is for him to be happy and as healthy as he can be....with or without 02!!


Im just gonna try to hold strong ....and keep praying!