Home Sweet Home

Well we did end up going home last night. The doctor and resident spoke and came up with a plan that I could agree to. It helps that the resident that was in charge of Noah on the floor (Christopher Jons who is great!) came in and explained things a little bit. It always helps to explain to the parents rather than just state what is going to happen. I wish most doctors would learn this. However we can always count on Dr. Jons to do this thats one of the qualities that makes him such a good doctor. Anyway... so Dr Jons came in and explained that this new medicine is one of those meds that never really leaves the system. Some of it will get metabolized out but most continues to stay in his system and when more gets administered to him that dose builds on the others. This is the reason for the dose to lower. Which makes since. So this being said the doctors sent us home on the 60g dose for 2-3 days. After this we will have a blood draw (i hate those they always have a horrible time getting a vein on him) they will check levels. We are planning on lowering the dose to 45g on Monday unless the blood draw speaks differently.

Last night was our first night home and it was so great to be back with Erik and the girls and of course my own bed. The girls really missed both of us while we were gone and Marissa even made me a card expressing this. It was so special to me. Noah actually did really well. He got up once for an hour with Daddy.... a small siezure awakening him but it didnt last long and it was just a little body tremors nothing major (phew).

He actually has done very well today and has been up most of the day and has began to drink bottles again. For the past couple of weeks we have struggled with this and needed to pump him his feeds for he was coughing on his bottles. Today he has drank 8oz all by himself and I have not felt the need to pump....YAY!!! thats a relief.

Well today has been a day of relaxing and just enjoying being back in the home....time to go bake some banana bread for the hunny! **** I think he missed having his chef at home hehehehe***