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Thursday, April 19, 2012

Epilepsy

Every year around this time we usually participate in the Saco Maine Epilepsy Walk. This walk is a very important cause to us. Noah struggles with siezures on a daily basis and this walk will help raise money to hopefully help find a cure or other meds that could help us and everyone else fighting with such a horrible condition. This year we are unable to participate in the walk because I will be bringing Erik to the airport that morning for a work commitment that he needs to fly out for. But I couldnt just sit back and do nothing. So I have set up a fundraising page so that I can still do my part. Please take the time to donate to our page. I understand that the economy is really horrible right now but this cause is very important. Can't u skip your coffee for the week and donate just $5. Every little bit helps. Noah is doing ok still. He still needs the 02 to breathe but can be off the 02 for about 30 min on his own. On a good day he can even be off for about 2 hrs. But those days are far in between. His siezures are still frequent but are small in comparison to what he was having when his 02 stats kept dropping. However small they are it still breaks yr heart as a mom to sit and watch or hold your baby as he siezures and not be able to stop them..... lately they have only been lasting about a min and a half to two minutes. But its the longest 2 minutes of yr life. Kindergarden registration came in the mail the other day. I cannot believe he is five already. Where does the time go? At least we will be staying at Morrison Center as long as nothing changes.

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